The FA Project is a 501(c)(3) Charitable Organization established in Massachusetts. Our goal is to raise awareness and funds to benefit those affected with Friedreich's Ataxia.
Our team is comprised of individuals who have all first learned of this debilitating disease through close relationships with Richard Currier. We all believe Rich is a special individual in many different ways and feel fortunate to have the opportunity to be a part of his life. For this reason, we aim to give back through our efforts in The FA Project.
For those who have not yet had the opportunity to meet Rich, we wanted for you to better understand his story and our inspiration for participating in The FA Project. Towards these efforts, we've asked Rich to provide us with a few words about himself. True to form, he complied with his family/friend's requests and delivered the following. We feel Rich's words speak for themselves as to our motivation for this cause:
I was born in 1978 and was raised in Winthrop, Massachusetts. Winthrop is a small seaside town bordering Boston to the northeast. My father grew up there and my parents still live there. My mother is originally from Ireland.
I have a brother named Sean who is four years younger than I am. We have always been close. I'm quite proud of Sean, he's a Sailor in the United States Navy. Sean and I had the typical childhood and adolescence and we were always close growing up. My extended family also lives in Winthrop - my grandparents (on my Dad's side), aunts and uncles. I have many relatives in Ireland, too.
I was always active in sports as a kid. I particularly loved baseball, basketball and soccer. Most of my closest friends also participated in athletics and we had a lot of fun playing in games together and all the other typical kid stuff growing up.
By the time I was in my mid teens I found that unlike earlier in my life I couldn't quite perform in sports at the same level as my friends. The changes came on gradually but steadily and by the time I was a senior I found myself spending more time supporting my friends who were playing than actively participating myself.
After graduating from Winthrop High School in 1996 I went to Salem State College to study business management.
While I was a freshman at Salem State I underwent a routine physical exam and the physician discovered some troubling signs. It took a while to sort it all out but eventually we found out why my physical abilities had deteriorated: Friedreich's Ataxia. None of us had ever heard of it, and nobody in my extended family had any form of Muscular Dystrophy.
Fortunately my case is on the milder side although it has slowly progressed in the years since I was first diagnosed. It didn't stop me from graduating from college or going on with my life, but I've had to make adaptations. Since 2003 I have used a wheelchair.
Although this was a devastating diagnosis to receive at the time when so much of my life was ahead of me, I have adjusted with the support of my family and friends. Most importantly my wife Maria, who I began dating in and around the high school years. She was with me when I was first diagnosed and has been at my side ever since. We were married in 2005 and now we have three beautiful daughters, Gabriela, Mia and Audra.
Since 2004 I've worked full-time, five days a week, commuting from our suburban home to downtown Boston. My work has afforded me the opportunity to actively participate and make a difference in people's lives.